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Axis Advocacy podcast
www.axisadvocacy.org
Category: Non-Profit
Location: Pasadena, California
Followers (8)
Currently following. Unfollow
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Who We Are: We are Moms and Dads, Grandparents. Husbands and wives, Loved ones, People living with Sickle Cell, People caring...


by Axis Advocacy
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March 24, 2018 09:59 PM PDT

Bill Cummings (father, Axis Advocacy board member and blogger) joins us again to talk about some of the legislation taking place with regards to rare diseases.

December 29, 2017 04:08 PM PST

We're joined by Reverend Gordon Clay Bailey of the Unitarian Universalist Church of the Verdugo Hills. We're talking about how music plays such an important part of our lives.

December 10, 2017 11:18 AM PST

Sickle Cell Advocactes Shamonica Wiggins and Jewel Darbone of Bold Lips For Sickle Cell join us to discuss their organization and what brought them together. 

December 03, 2017 02:21 PM PST
Dr. Steven Froelich joins us again to discuss the various forms of grief. He'll discuss possible ways to cope. Dr. Froelich is a Team member on the Beverly Hills Police Department’s Crisis Negotiations Team as well as being a member of their Peer Support Team. He also serves as a Mental Health Professional with the Los Angeles County Fire Department’s Critical Incident Stress Management Program.
November 19, 2017 11:46 AM PST

Bill Cummings (father and blogger) talks about his son's struggles with sickle cell disease and why there is a need for better treatments for this condition.

November 12, 2017 04:21 PM PST

Our guest is Tanya Price, the President and Co-Founder of Sickle Cell Houston.Serving as Houston’s leading sickle cell Community Based Organization and Coordination Center, they provide various services aimed at achieving healthier outcomes for individuals living with the inherited rare genetic disorder known as sickle cell anemia.

October 29, 2017 04:56 PM PDT

Our guest is Ashley Gregory of the Hemophilia Foundation of Northern California. They provide advocacy, support, and resources to over 3,000 Northern California families (in 47 counties) with a myriad of inherited and acquired blood related conditions.

October 17, 2017 11:43 AM PDT

We're joined by Andy Thorburn, a nonprofit founder, a former classroom teacher and an advocate for people living with chronic illness. He is also running for Congress in CA-39.

October 08, 2017 07:33 PM PDT

Today we’re speaking with many of the presenters and attendees of the recent HD-Care symposium on Huntington’s Disease at UCI. Dr. Neal Hermanowicz, Stem Cell Ambassadors from Americans For Cures, Allen Fernandez of I’m Curable, Frances Saldañia, the President of HD-Care and Dr. Sarah Hernandez

September 16, 2017 12:10 PM PDT

We're joined by Bishop Bob Kabugi from Kenya, Africa and Nurse Advocate Pat Corley to discuss the world wide issues of Sickle Cell Disease.

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