We are joined by Casey Gibson and Shabreon Howard of the 1st annual Sickle Cell Disease Art & Film Festival, taking place on the Axis Advocacy campus in Pasadena, Ca on June 19, 2019.
Tickets are free but you need to have a ticket. https://www.eventbrite.com/e/scd-art-film-festival-tickets-59239860016?aff=efbneb&fbclid=IwAR0bwofPJBZjRNVnyy5RuTYyJr2tpf9vx36xfAMLF4eQESDPZjCcEK_qbCk

We are joined by Jared Snow (aka J.Snow) who is an actor, writer, and stand up comedian hailing from Compton California. He began producing comedy sketches on YouTube– and over thirty million views and several years he's working on a new film called Flawed.

We're also talking about the 1st Annual SCD Art & Film Celebration on June 19th at the Axis Advocacy Campus.

https://www.everybodygotflaws.com

Celebrating the accomplishments of the past year in the Sickle Cell Community, we're joined by Shabreon Howard,a Mother, Photographer/Filmmaker, Sickle Cell Advocate and Writer. Plus we're joined by Nurse Pat Corley and writer Marissa Cors.

Bill Cummings (father, Axis Advocacy board member and blogger) joins us again to talk about some of the legislation taking place with regards to rare diseases.

We're joined by Reverend Gordon Clay Bailey of the Unitarian Universalist Church of the Verdugo Hills. We're talking about how music plays such an important part of our lives.

Sickle Cell Advocactes Shamonica Wiggins and Jewel Darbone of Bold Lips For Sickle Cell join us to discuss their organization and what brought them together. 

Bill Cummings (father and blogger) talks about his son's struggles with sickle cell disease and why there is a need for better treatments for this condition.

Our guest is Tanya Price, the President and Co-Founder of Sickle Cell Houston.Serving as Houston’s leading sickle cell Community Based Organization and Coordination Center, they provide various services aimed at achieving healthier outcomes for individuals living with the inherited rare genetic disorder known as sickle cell anemia.

Our guest is Ashley Gregory of the Hemophilia Foundation of Northern California. They provide advocacy, support, and resources to over 3,000 Northern California families (in 47 counties) with a myriad of inherited and acquired blood related conditions.